Monday, June 30, 2008
Meet the family
After our congregation decided to move to Baltimore County from Baltimore City they purchased this 33 acre estate and used the mansion to serve as a church until we built the new church building. But more on all of that in anther story.
I remember thinking, I have never seen my mother more beautiful in this blue dress, or dad more handsome. All of us are dressed in our best clothes as we start off our lives together.
Steve is the oldest and currently lives in Manchester, Maryland with his wife Debbie. Steve is the one who rode down on his motorcycle several weeks ago to visit. Dad is retired from both the Baltimore County Police Department and the Amtrak Police Department, having served 20 years with each organization. Mom did a heck of a job of raising such a large family. Mom and Dad are still living in the house that we grew up in. Charlotte is third oldest and lives in Atlanta with her husband Andrew and her family. She does mission work and is currently in Liberia. She has traveled between the United States and Liberia for a number of years. My sister Chris lives in Catonsville, the same town as my parents, and has just completed 38 years with the federal government. She has purchased a motor home and has chosen to take a well deserved retirement. She and mom drove down in the motor home several weeks ago for a visit.
In the next row is me. I am the middle child, currently living in Jacksonville with Rick, my partner of seventeen years. Next to me is Chuck the next to the youngest. Chuck is currently living in Florida. My sister Tina is six months younger than me so that puts her fifth in age. (Keep in mind, we're a combined family.) Tina currently lives in Westminster Maryland not far from McDaniel College, my alma mater. Tina was down recently for a visit. My youngest brother Terry works for the State of Maryland and resides with Mom and Dad.
Thanks to Chris for sending me this photo last year. It is a treasured keepsake.
Family drive to Southern Maryland
Dad’s father, Pap Pap Schuhart, was originally from Southern Maryland – the Chaptico area. That is about two hours south of Baltimore. A couple times a year we would drive down for the day to visit relatives that still lived in the area. We would all pile into the station wagon – all nine of us – playing games along the way – the alphabet game, the license plate game, I-see-something. Now of course, kids can’t get in a car without a DVD, an iPod, or a cell phone.
Along the way we would watch for familiar sights. One in particular was the Wigwam Bakery. This bakery had a glass teepee out front lined with neon tubes. We never stopped but we always watched for it along the way. And of course, there were all the old motor lodge motels slowly falling into disrepair over the years – some advertising air conditioning, some advertising TV. They always had interesting names and we would watch for them each time. I think there was a Martha Washington hotel and of course others just named after local cities.
Aunt Lena lived in an old farmhouse and was a cousin of Pap Pap’s. Cousin Lottie was her daughter and lived in a newer home built on the farm. Cousin Lottie still lives there. The farm is no longer active and she will be celebrating her 91st birthday this year. When the farm was active they grew tobacco, corn, and beans. It also had a chicken house. It was the chickens that fascinated us. We couldn’t wait to get there, get some of the feed corn for the chickens, rub those kernels off and throw them through the fence to those birds. Of course, after a while our hands were completely blistered. We never learned and did it every time.
Growing up in Baltimore city and then Baltimore county, this much land was a luxury. We would run around all day long, walking through the fields, swinging on the swing, playing tag and just enjoying all this fresh air.
Aunt Lena would cook huge country meals. Of course chicken was likely to be featured at each of them. And at the end of the day we would drive home exhausted but invigorated from a day in the country.
Wheelchair Ramp update
Alan Curran, who has done a number of maintenance and repair jobs around our home, painting rooms, painting and repairing porches and decks, built the ramp. Alan donated his labor in building the ramp. We are both extremely grateful for his generosity. We're also grateful it was completed by the promised date even though we had rain most of last week.
In the "small world" area, Chris, the carpenter assisting Alan ended up giving up fishing on Sunday to assist with the ramp. He mentioned this to his girlfriend. Out of the blue, she asks "is this for Rick and Barry?". It turns out Chris' girlfriend is our dry cleaner over by Rick's former office. We were likely their best customers.
Now that the ramp is complete, the home assessment can be scheduled. Rick will pick me up in our car with the wheelchair I'll be using when I get home. Staff from the rehab facility will accompany to assess the appropriateness of the house for my return. The home visit should take place this week.
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Sunday, June 29, 2008
Outer Banks
The first year we rented the cottage from Phil Tigan who was Assistant Director at ISD. We went Labor Day weekend which started the tradition. We were two houses back from the oceanfront but still with beautiful views of the ocean. We toured the area going to Kill Devil Hills. We enjoyed the local grocery store, the Mucky Duck, and enjoyed the company of good friends. We spent some time during the week exploring lighthouses. We knew there was one more lighthouse at Ocracoke Island. We got up very early one morning to take the three hour one way drive. When there, we discovered a breakfast place with the best damn coffee in the world. It became an annual pilgrimage to go back for that coffee.
One of the idiosyncrasies of this house was a sliding screen door out onto one of the decks that was difficult to tell if it was open or closed – at least for me. I must have walked into that door five times. Luckily it didn’t get bent too badly. We finally had to put a marker on the door so I could tell if it was open or closed.
That first year two members of our party were not able to stay the whole week because college classes were starting. They were going to leave late at night and unfortunately had spent the entire week not getting gas. So late in the evening we’re siphoning gas from one of our cars to the other so they’d at least have the opportunity to get to a gas station. Jim offered Brian some milk to coat his stomach in case he accidentally swallowed some gas. Brian, not understanding the intention said, “No thanks, I’m not thirsty.” We used the house hose which we had to cut and they were successfully on their way.
The second year we had a different group and a different home. A picture of the group is included here.
Back row: Jim, Mark who I have known since second grade, Judy, Barry – no comments on hair and glasses please
Front row: Dave and Joan who now have a family in Ellicott city and just returned from the Outer Banks this evening from their annual multigenerational family vacation, Nancy a friend of Mark’s, Kathy, and John.
One evening we were all in particularly good spirits and perhaps ended up making a little more noise than was appropriate. More on that later. We also discovered by accident why the tarheels are called the tarheels. It took us some time to get the tar out of the bathtub that accidentally got tracked in.
We would usually do group dinners with everyone sharing in the cooking and cleanup responsibilities. This particular year, one of our group had brought a frozen turkey. Unfortunately the evening we were to have the turkey the thawing of same bird had not yet begun. We gamely moved forward with the dinner slicing off cooked pieces of the turkey as we could and continued cooking that bird throughout the evening. We had a lot of cheese and crackers, stuffing with too much onion in it, and luckily no one ended up with salmonella poisoning.
The third year we had a smaller group and were closer to the ocean. You remember from the year two I mentioned that there would be more about the evening that we partied a little louder than we should have. When we arrived at check in, the real estate agent said, “Well, Mr. Whiteley, we had some complaints from your neighbors last year about the noise. Please be more careful this year.” We were mortified. They hadn’t said anything on our way out the previous year but waited a whole year to mention it to us at check-in.
I remember this particular house had a guest book, a bottle of wine, and a note from the owner Millie. We had friends who were going to be arriving late so we looked at the phone, and gave them the number on it in case they had problems finding the house. Our guests did arrive late and said that they had had difficulty finding the place. We indicated that we had been home all evening waiting for a call and they said, “Well, the number you gave us isn’t the right number.” We checked and the number they had was the one on the phone. We called the number ourselves and got an entirely different person. So in our note in the guest book saying that had enjoyed the vacation we included a section saying, “Millie, Millie, Millie, why is the number on the phone not the number of the phone?” We never did find out what the number was.
It was an election year and we were having a discussion around politics. We were trying to recall who George McGovern’s running mate had been in a presidential election and it was quite late at night. It was of course befoe the Internet and none of us could recall the information. We finally realized that even that late at night the public libraries in Hawaii would be open. So, we called the public library in Hawaii to ask and got the answer to our question. It was Sargent Shriver. Since all of us in attendance were Marylanders we were quite embarrassed that we didn’t recall that his running mate was in fact from Maryland.
Several of those that went on these various trips have continued vacationing in the Outer Banks to this day. So we started a fine tradition of memories with wonderful friends.
Most of our time would center around playing games, taking long wonderful naps, walking on the beach at night, and enjoying the amazing phosphorescence that would literally set the beach and the ocean aglow. Since there were so few houses in the area, it was almost as if you had a private beach. We would do sing-alongs, “You Are My Sunshine” being a particular favorite. None of us are good singers but it always sounded very good to us. We stopped taking flashlights on the beach walks for two reasons - to see the phosphorescence and with the flashlights we could see all the crabs on the beach. Somehow it was better not knowing that you were about to have your toe nibbled by a crab. This was of course before the area got built up and the stars at night would be magnificent. We could see the Milky Way and felt like we could see the world.
Saturday, June 28, 2008
Second round of chemotherapy complete
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Hooked on cruises
We decided to sail on Royal Caribbean’s Mariner of the Seas departing from Port Canaveral – about 2 ½- 3 hours from Jacksonville. The itinerary was their western Caribbean offering - Port Canaveral, Florida; Labadee, Haiti; Ocho Rios, Jamaica; George Town, Grand Cayman; Cozumel, Mexico; Port Canaveral, Florida.
All of us selected different activities that we wanted to participate in. Now this may come as a surprise to many people. But Rick and I love parasailing. So in Labadee, Royal Caribbean’s private island, Rick and I did the parasail. In Ocho Rios we just wandered around the shopping area. We did a Nautilus submarine excursion in Grand Cayman.
In Cozumel we decided to go to the Mayan ruins at Tulum which border the Caribbean. Steve and Ben accompanied us on this particular excursion. Inside the city proper it was extremely hot but once you went to the edge that borders the Caribbean the view was spectacular and a cool breeze would blow over you.
Since this was the first cruise Rick and I had taken together we weren’t quite sure what to expect. We loved every minute of it. Our balcony cabin was perfectly situated. The Mariner of the Seas is a magnificent ship. The food was amazing. Incredibly enough, even though the average is to gain one pound per day I didn’t gain an ounce. I made sure that every day I walked the ship vigorously exploring all the different areas.
Of course the volume of activities they offer is infinite. One of the highlights of this particular cruise is a game similar to the Newlywed Game where they have three couples – a newlywed couple, a couple married about 25 years, and a couple married 50 years. You could not make up the answers that these people gave to the questions. It’s amazing how expensive Bingo can become on a cruise ship and how quickly those games move. You’re playing multiple cards at a time and you’re playing for high stakes money which adds to the pressure. And of course you’re always just one square away when someone else yells “bingo!” I don’t know how the women in those bingo parlors do it.
We all gathered for meals. Everyone did their own thing the rest of the time. Rick in particular enjoys an afternoon nap so on day two Ben started to ask if I had thrown Rick overboard because Rick hadn’t been seen in the afternoons yet. Walking the decks late at night was particularly beautiful – looking at the stars, feeling the ocean breeze just blowing over you. We often got into very spirited games of Uno with rules that never seemed to be printed on the box. I don’t recall winning but one game and that must have been a fluke.
Seven days passed much too quickly. Following is a photo of the happy cruisers. Seldom have I seen a group shot where everyone looks their best. It was a wonderful vacation that enabled us to share a lot of quality time with some very good friends. And while we have taken subsequent cruises, you never forget your first time.
Friday, June 27, 2008
TGIF
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A great photo of Rick
Thursday, June 26, 2008
A cavalcade of ID badges
Many have photos that are absolutely horrible images of me. A couple bear mentioning. There are two badges from St. Mary’s Milwaukee because on the first badge the word Information was spelled wrong. On one of my badges from St. Thomas in Nashville – a blue engraved one – they wanted our titles. At the time my title was principal consultant and I told them, “principal with a P A L” to be sure it was spelled properly. Lo and behold the next day my badge arrived and is says Barry Whiteley, PAL, Hospital Information Systems. They did redo it but I still have that one. One of the badges was an access badge to the Advanced Development Center for CGE&Y in Chicago. This is where the OmniBuyer implementations were developed. It is quite possibly the worst photo ever taken. All of us look like munchkins on our photo badges.
On my last ISD badge, the photo was a reasonable likeness but the coloring was off and I always looked like I had a bad case of jaundice.
My current Ascension Health badge actually has the best ID photo ever taken of me. Thank you, Alicia.
A number of my Daughters of Charity service pins are also on the board. These pins were issued every five years.
My original ID did not have a photo on it. But if it had, it would have been the following picture because sometimes that’s how long I feel I have been with the organization.
Cafeteria food
Providence Hospital in Mobile, Al makes a mean fried chicken. It's as good as any you would get anywhere else
One time at Good Samaritan in Pottsville there was a item I had not seen before. When I was told it was a dumpling filled with potato filling in butter and onions I thought, well, that sounds interesting. I was about to have my first pierogie. It was not my last.
Seton Medical Center, Austin, Tx, introduced me to the best breakfast burritos I'd ever had. Someone would set up a cart outside the office building where Purchasing was located. If they were gone when I arrived in the morning it would be a disappointing day.
St. Vincent's in Birmingham celebrated National Pickle week one time with a pickle bar. I love pickles and was very surprised to find watermelon pickles included in the selection.
I was at Providence Hospital, Washington, D.C. and was pleased to find they actually had scrapple for breakfast and well as old fashioned pork sausage. They also make a heck of a cheese steak.
I know that my very favorite hospital cafeteria food was from Columbia-St. Mary's in Milwaukee. I'm ashamed to admit I would even check before a trip there to find out if it was the right food cycle week to be able to have "Tater Tot Casserole". A basic ground beef, cheese, tater tots, onion, cream of mushroom soup mixture topped with more tater tots crisped on top. Yum. I miss it already.
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Physical therapy
Some medicine ball throwing and catching and some spirited balloon badminton for reaction and stretch rounded out the day.
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Wednesday, June 25, 2008
An Ormond Beach Icon
The menu is pure 60's also. Shrimp cocktail, stuffed mushrooms, prime rib and Chicken Supreme.
The web site indicates the restaurant has been open for 35 years with the same manager.
Mai Tais with an umbrella are likely ordered regularly. It was an interesting step back in time.
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Monkey update
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PT update
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Tuesday, June 24, 2008
Chemotherapy / Physical Therapy Update
In physical therapy today I continued standing practice and was able to stand for 3 minutes 45 seconds today. I did twenty minutes on the mechanical bike for arms and my regular weight routine. I did manual foot bicycling today – this is the same piece of equipment that is used for arm biking – a set of pedals and a stand – but this is the first time that I had done any leg or foot biking that was not mechanically assisted. I was able to apply forward and backward rotational pressure with both legs equally. It was not only the left leg driving. The right leg was also participating. So while the right leg continues to lag, there is function there.
The last new exercise was to remove my legs from the wheelchair foot rests and to move myself across the floor in the chair with my legs. I was able to do this easily in reverse with both legs on tile. This of course would involve placing the foot on the floor and pushing backwards. Moving forward I’m currently only able to do with the left leg. Digging the heel on the floor, pulling forward, stopping and repeating so as not to let momentum move me but make my legs move me. I currently cannot move forward with my right leg.
My blood pressure continues to be perfect every time it is taken. My sugar is well controlled and blood work continues to be normal.
On the streets where I used to live
Blogmaster Nancy was one of my roommates in my first and second apartments. My first apartment was in Catonsville actually around the corner from my parents’ house in an older development with no air conditioning. The original rent in 1979 was $205 per month including heat. My second apartment with Nancy was in Anne Arundel County. It was in a much more modern complex with air conditioning, swimming pool and a slightly higher price tag.
The third was my first venture into Ellicott City but not in the historic district.
The fourth apartment is one of the most interesting places that I have ever lived. Blogmaster Jim was my roommate. We lived on the second and third floor of a storefront building on Main Street in historic Ellicott City. At one point this building had been a hotel and each of the three floors had a ground level exit because it was built into the side of a steep hill.
Moving day was quite interesting. Many historic districts offer permit parking to residents. Ellicott City did not. Luckily my good friends the Heasleys were willing to help me move. We had to park the moving truck in a parking lot two blocks from the building. Furniture was carried down the railroad tracks, over Main Street and behind three other buildings to get to 8016 Main Street. Now those are good friends.
The apartment was one room wide. The second floor of the building was our main floor. There was an entrance from Main Street that would take us up a narrow flight of stairs with a sharp turn at the top. Our first floor consisted of a small living room, small dining room and a kitchen. There was a dishwasher that we always used for storage. The deck out the back went into what could euphemistically be called a garden. A staircase in the dining room plus a staircase on the deck would take you to the third floor where there were actually three bedrooms and a bath. The center one had a skylight and no window and the deck on the back also opened onto ground level. It was quaint, it was charming, and it was fun.
The first morning we discovered that the train tracks were still active. At 6:00 a train goes rumbling by vibrating the 18 inch thick granite walls much to our surprise. It’s amazing, though, how quickly you learn not to hear a 6 a.m. train.
Downtown historic Ellicott City has always been an extremely active area. There were many restaurants within walking distance. There was Leidig’s Bakery and since I now lived just down the street from Leidig’s I was the designated donut picker upper for the office. People always insisted on Leidig’s donuts.
The Patapsco River flowed just next door and in 1972, Tropical Storm Agnes wreaked destruction on Ellicott City. The high water mark is still tacked to a telephone pole. The water level would have reached the second floor for our building.
Parking was always an issue. We could never park on the street for more than two hours at a time. If we were lucky, we’d be able to grab a spot on the street just as the parking enforcement time expired for the evening or we’d have to park in one of the three public parking lots. One was one block away, one was two blocks away, and one halfway up Main Street which was quite a haul with groceries.
Jim and Connie threw me a surprise 30th birthday party in Ellicott City. The apartment was crammed with friends and there was a huge pile of gifts. Who could help but be excited by a huge pile of gifts? Now in these days I was a bit of a clothes horse. My tiny closet was jammed with suits and shirts for work because at this time our dress code literally required “impeccable suits and dresses” and we used to joke that ISD stood for that. The back of my closet door had a tie rack on it with ties arranged by color – probably numbering over 100. Jim actually used to jokingly give tours of my ties when some of his friends would come over.
Back to the party. As I looked through the pile of gifts of all different shapes and sizes I started opening them. Much to my surprise the first package contained a tie but the package did not look like it. And it was difficult to maintain a look of “Oh how nice, what a lovely tie” because it was certainly not to my taste. As I opened the second gift Barry starts to catch on. Again, no indication of what’s inside but there is in fact yet another ugly tie in the package. Not only had they managed to pull off a surprise party with absolutely no inkling of what was going on but they managed to pull a practical joke on me. Each tie was uglier than the last. We turned it into a contest. Many of these ties had come from the closets of the fathers of the guests and had to be returned because they were being worn. Some came from thrift shops but the winner came from Marlene Langdon, the mother of one of my friends, Tracy, who is now living in Tucson. Marlene managed to find a tie that was brown velour that when tied looked like you had a huge fist at your throat. The party was a huge hit and one of the most memorable birthday parties I have ever had.
Moving out was just as interesting as moving in. I was to be moving to the Carriage House on the grounds of the church – more later on that. As I was coming down the stairs from the bedroom level for the last time, I made the mistake of thinking “Oh, let me just roll this bag of clothes down the steps and it will land safely at the bottom.” Instead it took a bad bounce on the way down the steps and punched a big hole in the wallboard. Luckily Jim’s brother was quite adept at fixing this sort of thing and it was not a problem at inspection time.
Jim was in the apartment for several months longer. As we were doing final cleanup I’m walking down the stairs and Jim turns around and notices that the bottom of the box I’m carrying is ready to collapse. Unfortunately in this box is the remainder of the can of paint that was used to repair the hole in the wall that I had created. And, no, I was not at the bottom of the steps. I was near the top. This can of paint, of course, flies open, throwing paint all over the non-white stairwell which we then cleaned up madly with anything we could find. One thing I do recall was that there was a blue sports jacket in the box which mopped up some of the paint quite well. In the meantime Jim and I are collapsing in hysterics but we managed to get the stairwell back in order. Life in E.C. was never a dull moment.
Monday, June 23, 2008
Local oddities
Any oddities where you live?
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Physical therapy update
Chemotherapy starts tonight
Teamwork
After the software team completed programming and testing we moved into implementation in the Daughters of Charity hospitals that were part of the Northeast and Southeast Provinces. This new implementation team consisted of Howard Allen, myself, Mary Ann Corkran, now a CIO at Johns Hopkins University (I still keep in touch with Mary Ann), and Kathy Egner. We spent several years implementing the system in thirteen hospitals. We got to know each other so well and traveled together so often and dined together so much that people began to assume we were two married couples. At one point in time it had been determined that I had spent more of Mary Ann’s wedding anniversaries with her than her husband Rich. When I was talking to Mary Ann the other day, she started to relay a story to me that I immediately recalled. We were in Binghamton, New York at the Holiday Inn Arena downtown. It had been a very long day and we had stopped at the hotel lounge. I never really was much of a drinker but I suppose that evening I may have had one too many. We must have gone through multiple bowls of Tostitos which both Mary Ann and I specifically recalled and at one time I looked up and Howard, Mary Ann and Kathy were staring at me in horror. Apparently I had been laughing and had thrown my head back, hit it on the corner of a brick wall, and didn’t feel a thing. We all called it an evening after that.
In another memorable situation it turned out that one of the original development programmers had a bit more of a sense of humor than any of us knew. Before Rosie left the organization she had been working on a particular function that required a high level of difficulty to complete appropriately. Before she left I asked her assurances that this was completed. Rosie assured me that it was. A week later I was looking at the code and noticed that she had inserted a comment that said, “And then a miracle occurs.” She had in fact not completed the code. I was left with the responsibility of creating that miracle in Assembler Level Macro Code where our largest program had to be 16K or under. Yes, that does say K. But Rosie wasn’t done yet. We got a phone call one day from one of our users complaining about an error message that had come up on the screen. We said, “What message are you talking about?” and she said, “The turkey message.” We said, “The turkey message?” Normally when you want to relay an error to a user you use the politest language possible. Rosie had decided that this particular error would be so egregious that the message said, “You can’t do that, you turkey.” We had to remove that message immediately but it lives on in infamy.
My next team was my Baltimore MedSeries4 team. This consisted of Dave Galloway, George Walker, Bill Manwarring, and myself. By this time I was managing two teams, the COMMS team and the MedSeries4 team. The four of us were installing MedSeries4 in the same facilities where we had previously installed COMMS. In Pottsville, Pennsylvania we went to the same diner every morning. The server would see us pull up and within minutes of walking in the door our orders were already on the table because we had the same thing for breakfast every day. We often fell into the trap in the evenings of saying, “Oh we’ll get out in time for dinner. Let’s not go to the cafeteria.” Of course we never did and we’d end up eating out of the snack machines – usually cheese crackers. After a while for some reason we started referring to the cheese crackers as turkey sandwiches. But not everyone caught on. One evening Dave said, “I’m about to go get some turkey sandwiches, anybody want any?” And Bill pipes up, “You know I don’t get it. You say that every night and you always come back with cheese crackers.” Bills energy level would wane quickly as the week wore on. Both of these teams would work so hard and learn so much in those times that I know they have all progressed to excellent careers.
Perhaps the largest and most diverse team that I have worked with is the team that grew from two people in 1990 to nine people by the time I transitioned to supply Chain in 2007. This was the MedSeries4 team for the East Central Province, later combined with the OmniBuyer implementation team.
Front row: Maddie Vecchi, Cathy Riley, Scott Culiver
COMMS had been installed in the Daughters of Charity East Central province also but was going to be replaced by MedSeries4 as it had been in the Northeast and Southeast. Jim Hook and I began that process in 1990. At the time I was living in Baltimore, Jim was in Evansville, Indiana and we would travel to the various sites to do the implementations. As our support base grew, Maddie Vecchi joined us in 1994. Maddie lived in Salt Lake City. Over the years we added Jan Clark now in Bend, Oregon, and Cathy Riley from Salt Lake. Maddie, Jan and Cathy were all from the MedSeries4 organization so they were a perfect fit for our team. In 2001 Ascension Health Supply Chain reviewed their data requirements for products and contract analysis and embarked on a project to put an Internet-based requisitioning/workflow system as an overlay in all Ascension Health facilities. The product was OmniBuyer and our team became the implementation team for the product across the country. We added Scott Culiver, Linda Clemmer, and Cindy Hawes all in Evansville. All three of these individuals transitioned from other positions in ISD to join the team. A few years ago Tarun Gulati, now in Chicago, also joined our team. Unfortunately Tarun is not in the team picture that is featured at the top of this section.
Please note, all four time zones of the United States are represented on this team. I believe there may still be team members that have not met in person. Of all the teams I have worked with, my proudest professional moments have been with this incredible group of people. Juggling twenty-four hour on-call for multiple systems for nearly every Ascension facility across the country, handling support issues for well over ten thousand users, developing new processes and procedures, this team never failed to step up to a challenge and continues to do so to this day.
Shortly after we were transitioned from Ascension Health ISD to CSC, I did not feel fulfilled in my role as a CSC manager. I went to my manager Sondra Schoenbaum and asked if there was some sort of solution we could determine. Scott had significant previous management experience. We were able to affect a trade in jobs. Scott became my manager and took over the management of this outstanding team of people.
I do have many amusing stories about this team but I will list those separately because there are too many and God knows this has gone on long enough. I realize that this is a very long entry but nothing of value is completed in a vacuum. I wanted to acknowledge and thank all of those team members over the years that I have worked with and that have had such a significant impact on my career. I pray I have had an impact on theirs.
Sunday, June 22, 2008
Just about the biggest dog I've ever seen
Jackson, her Labrador/Great Dane mix is five years old, pure black, and weighs one hundred fifty eight pounds. Even with my bed raised, he was taller than the bed. He appeared to be the size of a small horse. He was also very gentle and like nearly every dog on earth, just wanted some love.
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Saturday, June 21, 2008
Regional foods
Surprisingly enough, a few months ago, I found Tastykakes in our local Publix. A month later, they were in the clearance section. Regional foods truly are regional. Another time in Chicago on a sub shop delivery menu under desserts it listed “Tastykakes available.” I was surprised to see that. But back to Rheb’s.
When I started working for the Daughters of Charity Eastern Cooperative Services Information Systems Division, the building was located on the grounds of St. Agnes hospital, a member of Ascension Health. Luckily it was about two years before I knew Rheb’s was across the street. The factory is still located in the original building, the basement of a row house. The candies are still made by hand and when you go in the store you can buy prepackaged or you can select every single piece you want to put in that box. And the selection is huge.
They are legendary for their lines out the door at holidays. They used to have to cut off guaranteed Christmas orders by Labor Day. And if you braved the line at the holidays it could take hours to get your order and when the chocolate ran out the store was closed. It was not unusual for people to place orders of twenty to thirty pounds, particularly at Christmas. A gift of Rheb’s meant you went to some effort.
The longevity of the employees is legendary. The last time I was in the store in December 2007 the daughter of the original owner was still working behind the counter. For the longest time it was cash or check only but they now have a web site and will ship, weather permitting. If it is too warm they will refuse to ship so as not to compromise the quality of the product.
I have often taken Rheb’s across the country as gifts. Many people feel that it is better than Mrs. Sees and other nationally known specialty brands. Since they’re currently not shipping due to the warm weather, I can’t even confirm the price but I believe that it is around $15 per pound. Best chocolate bargain in the country.
This topic of regional foods came up because I have had so many recent visitors from Baltimore. Many of these products have found their way to my room and just as quickly, unfortunately, have had to go home. Before they were sent home I did savor and sample them and shared them with my guests and visitors. But temptation is just too great. As a diabetic, my glucose levels are carefully monitored.
Since I have traveled around the country so much to our various facilities I have sampled some of your regional products. What are the ones that are dear to your hearts?
Cleo and Tootsie
Friday, June 20, 2008
Weekend visitor and a classic story
The reception was going to be a BBQ at Tina's home. It took Tina a very long time to get to the party. I just assumed she got held up with pictures or something.
The next week, I'm shopping at the Giant grocery store (store name not size). As I'm checking out, I notice something very unusual a few checkouts away and commented on it to the cashier. She remarked "That's nothing. You should have been here last week. A woman in a wedding dress with twin flower girls (my nieces Jessica and Vicki) was in line buying hot dog and hamburger buns".
I finally figured out at that moment why it took Tina so long to get to the party. :)
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Garden sign
The kiss of the sun for pardon
The song of the birds for mirth
One is nearer God's heart in a garden
Than anywhere else on earth
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Cassie and Cricket
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Margo and Simon
Like most brothers and sisters, they both love and torture each other at times.
They both provide such joy in our lives even when Margo won't go out in the rain or when Simon decides to do a beagle bark much too early in the morning. (Click on any of the pictures for a larger version.)
Thursday, June 19, 2008
Care planning meeting
With the insurance company approving continued rehab on a weekly basis it’s always possible that I could actually have 48 hours notice that it will be time to go home. To that end, we have scheduled a home assessment for next week assuming we’re able to get a ramp constructed in time. This visit would entail Rick picking me up in our car and going over to the house. Rehab center staff would be with us and they would asses the appropriateness of the house layout.
Rick and I had the opportunity at the care planning meeting to ask any questions that we had and the staff was able to provide all the answers that we needed.
Physical therapy update
For my weight exercises I was able to move up from 2 lb to 3 lb weights. I know that doesn’t sound like much but they seem pleased with progress.
The therapists feel that my upper body strength is improving but combining the therapy does make for an exhausting afternoon.
On the street where we live
There have been times when I went crazy planting the front gardens – one year planting 450 four-inch impatiens in an intricate pattern. While beautiful, I will never do that again. This year I planted borders of red and purple miniature pentas, multiple shades of geraniums with spreading pentas behind them.
(Note: Click any of the following photos for a larger view.)
Here are some photos that show our back yard.
Around the corner from our house are the shoppes of Avondale. The shoppes include six different restaurants including one of our favorites, the Fox, which is just an old-fashioned diner with wonderful food. If you’re not there in time on the weekends you’ll be in a line of 15-20 people waiting to get in.
Another is The Brick which has the closest to Maryland crab cakes that I have found in Jacksonville. The remaining shoppes are a mix that appeal to the ladies who lunch or those looking or something unique from a local specialty shop.
The St. John’s River is a few blocks from our home but and many of the streets have direct access to it. These shots were taken from Edgewood Avenue which is a gracious larger cross street with a park-like median. At the river’s edge you are able to see downtown Jacksonville.
Over the recent years downtown has experienced a bit of revitalization with a number of condo and apartment towers being built and a few shots of downtown are included. All of this is just to give you a sense of where we live.
Mom and Chris update
Canine visitation
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A message from Rick
I had a nice visit with Barry's mom and sister Chris. I understand where Barry gets his strength and courage. I am so proud of Barry's determination to gain as much mobility and independence as possible. He takes his PT seriously and I know he will reach his maximum medical improvement soon.
Each one of you has been a Godsend with your prayers and good wishes. Barry is truly blessed to have you in his life.
Rick
Mom and Chris
Margo and Simon have not been around lots of other dogs, so it was a great surprise (and relief) when all four played together beautifully. Whew
Wednesday, June 18, 2008
Appointment with the oncologist
My oncologist is the regional melanoma specialist and we’ve always had a very open, honest and frank relationship. As Dr. Guthrie examined me he determined that there had been some shrinking of the lymph nodes that had originally been of concern. The four day chemotherapy regimen that I followed earlier appears to have had some positive effect. My oncologist does feel, given the other circumstances that I’m dealing with - the rehab, that continuing the chemotherapy regimen is the most appropriate option for me and I concur.
When I first was diagnosed with metastatic melanoma in 2006 I knew there was a possibility that it could recur and that I would not experience a normal life span. That does now appear to be more of a likelihood. Cures for melanoma that have entered other body systems are rare. The fact that the chemotherapy will be of some benefit does not mean that it is likely to be a cure.
During the appointment Rick was with me as well as a co-worker of Rick’s, Dr. Reuben Brigety. Reuben has been an excellent resource to us, helping us with questions. At the conclusion of the exam I did ask Dr. Guthrie, if the Temodar continues to be successful, what time frame am I likely looking at. His straightforward answer was nine to twelve months.
After the appointment as I was waiting for the transport van to take me back to the rehab center, Rick and I were sitting in the lobby of the medical building for about twenty minutes. I am not on this journey alone. Rick is being as strong for me as I am attempting to be strong for him.
Let me be clear, this does not mean that Barry is giving up. This does not mean that Barry is going to stop fighting this. What it does mean is that Barry needs to understand the parameters that now surround his life.
I continue to draw incredible strength from all the emails, phone calls, blog comments, and cards. Those of you that know me well, particularly in the Supply Chain office, know that in the True Colors personality profile I am high green (very data driven) and dealing with this in a green fashion is the only way that makes sense to me.
While this is certainly not the news I had hoped to receive, it is the news I expected to receive. My sense of humor is still intact. My zest and joy for life is here and not going anywhere. Each day is going to be lived to the fullest.
There certainly have been positive elements to this journey. I have had the opportunity to truly discover how many lives I have touched even when I was not aware of it. I have developed an inner peace that I didn’t realize was possible. I also always feel as if I am surrounded by the thoughts and prayers of all of you that are part of this journey with me.
Physical therapy update
Today I did some standing with the parallel bars. Both Manny and Rachel are Filipino. It’s unusual for me to be called tall but both of them said, “How tall are you?” I said, “I’m five ten and a half. I’m not that tall.” But they said, “You’re taller than we are.”
One of the exercises was doing sit-ups. I had to laugh because I could never do sit-ups when I was healthy. These were modified sit-ups with cushions under the back to try to strengthen the abdominal muscles. I did some additional leg exercises, too, and my therapy session this afternoon was probably about three hours.
Tuesday, June 17, 2008
Therapy today
Mom and Chris today
Mom and Chris spent a comfortable evening in Chris’s motor home and visited me this evening. We had a great time telling old stories and I’ll see them again tomorrow evening. Not sure what specific plans they have for the day tomorrow.
Aunt Naomi as Mae West
I love New York
My initial trip to New York was when I was still in high school in 1975. A friend of Tracy and mine, Joe, had family in New York, his grandmother and his aunt. Joe invited Tracey and me to accompany him on the train to New York for the weekend. Mom and Dad said “Yes,” and I was ecstatic. When we arrived in New York, Joe took us all over the city by subway. We went to the Bronx Zoo, we saw all the major sights, but the thing I remember the most was seeing my first Broadway Show. It was at the Palace Theatre. It was called “Goodtime Charlie” and starred Joel Gray and Carol Reinking in her Broadway debut as Joan of Arc.
As we were standing in the theater lobby, I remember looking around and, much to our surprise, we see “the other Mrs. Jones.” In our high school, the mother of one of our friends, Cathy Jones, worked there, but there was also another Mrs. Jones who worked in the office. So it was a bit of a surprise in the middle of a crowded theater to find someone that we knew. After seeing that show, I was hooked.
I visited New York many other times for sightseeing. Once in college, my art history class went to New York for the day. We of course went to all of the museums and several of us decided to stop in a restaurant for dinner before heading back on the bus. After we were seated and saw the prices on the menu, we had to discreetly stand up and leave the restaurant. After all, we were all on college students’ budget. We ended up eating, much to my chagrin, at Tad’s Steakhouse. Any of you who have ever been to New York know that it probably would have been better if we had gone to McDonald’s.
Years later, another friend of ours, Kas, worked for NBC News. I was working at our hospital in Bridgeport, Connecticut. Kas and I arranged an evening on the town. We got tickets to “Gypsy” with Tyne Daily the night before she received the Tony Award in 1990. We had dinner at a Manhattan restaurant, and then went to the Carlisle Hotel to hear Bobby Short. It was the quintessentially perfect New York evening.
Subequently, Rick and I have been to New York many, many times, but those stories will be saved for another entry.
Monday, June 16, 2008
We now interrupt the regularly scheduled blog entry...
Just in case anyone is wondering, members of my family do actually drive regular vehicles since so far we’ve had a visit from a motorcycle and a motor home.
Sorry tonight’s entry is so short, but Jim and I will pick up with my original plan tomorrow.
Physical therapy and upcoming appointments
This morning in the continuation of upper body exercises a new twist was when Deb indicated we were going to the parallel bars. I was a little confused because morning is more occupational therapy and afternoon is physical therapy concentrating on legs. What we ended up doing was practicing standing. I was able to push myself out of the chair and transfer my hands to the parallel bars which were a little higher. On the first attempt I was able to stand for 40 seconds. On the second attempt I was able to stand for 60 seconds. My right leg continues to lag behind the left. Locking the knee in place is part of the difficulty.
In afternoon therapy, I continued practicing transfers with and without a sliding board (a board that serves as a bridge from one surface to another. You slide your body from bed to chair, chair to bed). Non sliding board transfers involve standing pivoting and sitting. I also used the Omnicycle again. The right leg which I am concentrating on with the bike went from 16% effort to 22% effort so I am continuing to see some incremental improvement in the right leg.
Important appointments and meetings this week
I do have a doctor appointment on Wednesday with my oncologist. It is anticipated that we will be discussing treatment plans for the melanoma and details of the most recent PET scan. On Thursday, Rick and I will be meeting with the rehab center staff to get an overall evaluation of progress since my arrival. They call it a discharge planning meeting which of course concerned me at first until we realized exactly what the meeting entails.
Results of both the oncology appointment and the planning meeting will be discussed on the web later in the week.
Sunday, June 15, 2008
Weekend physical therapy
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Surrounded by love
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Saturday, June 14, 2008
A funny Birthday Card
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A ministry of cards
A day of visitors
Friday, June 13, 2008
Therapy
I also have some additional exercises that I can do on the weekend so the time is more productive.
Margo and Simon
This weekend
Thursday, June 12, 2008
Thursday therapy
Therapy this morning included using the Wii. I did all the regular therapy so this was a welcome diversion. This afternoon I was on the parallel bars again. I went down the bars twice. The therapist did a lot of leg work today but none on the omnicycle. He also showed me some exercises that I can do on weekends when therapy does not take place.
When I came back from the morning session I discovered that my mattress had been replaced by an air controlled mattress to assist in healing the bedsores which are progressing well.
It's official
Bush's Baked Beans
Visiting Westminster
Last weekend, blogmaster Jim and my sister Tina both happened to attend a graduation ceremony at